Thriving with Special Educational Needs and Disabilities


With thoughtful planning, you can help ensure the future care of a loved one with Special Educational Needs and Disabilities (SEND)

To live a full, secure and happy life – it’s what all parents want for their children, including those with children who have SEND. Families caring for a relative with special educational needs often require additional planning to make that dream a reality.

If you’re the parent or relative of someone with special educational needs and disabilities you may have wondered what you can do to secure their financial future. Here are a few financial strategies and planning steps to consider.

Resources from the local government

The Children and Families Act 2014 includes a duty for each local authority to support children, young people and parents on matters relating to a child or young person’s special educational needs or disability from birth to 25 years. Each council is required to have a Local Offer, outlining the support and services available within the community for children and young people with SEND. You are entitled to feedback on the services available in your region.

Additionally, exploring government benefits can provide you with valuable financial support. Your local council is a great resource to help you navigate the process and determine which benefits you may be eligible for.

Knitting a safety net

Estate planning for someone with SEND in the UK involves several key considerations to ensure their financial security and well-being. Some important aspects for parents to consider is if government benefits will be enough to give their child access to an adequate standard of living.

Trusts are common to ensure there is at least another method of income for your loved one. This solution preserves the child’s entitlement to benefits and local authority assistance.

Wills, Lasting Powers of Attorney (LPAs), and child guardianship are also important for families with individuals with SEND. By carefully planning and implementing these legal tools, families can ensure that their loved ones receive the necessary care and support, maintain their quality of life, and have their best interests protected even when the primary caregivers are no longer able to provide direct care.

This comprehensive approach to estate planning provides peace of mind and stability for both the individual with SEND and their family.

A stand-in guardian

Choosing a successor guardian is a crucial but often difficult task for parents. If full guardianship is needed, you’re essentially asking someone to fill your shoes – taking care of all social, emotional, physical, educational and medical needs for your loved one when you no longer can. Be sure to choose a trustworthy adult who has only your child’s best interests at heart.

Once you’ve chosen a guardian, detail your preferences and instructions through an official will, though a court must still confirm the appointment. Parents should also name a backup guardian, just in case.

It’s important to determine the living arrangement as well. Do you want your child to remain in the home and have the guardian move in? Or would your child move into the guardian’s home? There are also options like supported living, shared lives schemes and group homes for those who need more involved care. Explore these choices to find the best fit for the individual’s needs and preferences.

Keep in mind that there are several legal considerations when choosing a living arrangement for someone with SEND.

Caring for those who need it most

For most parents of a child or young person with SEND, ensuring total care of their loved one is their life’s work, perhaps becoming even more important when they’re no longer able to provide the care themselves. Working with a wealth manager and other professionals on the bigger financial picture can provide a sense of ease, knowing you’ve done all you can to protect and provide for someone you love.


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